Illustration: Chelsea Beck
When Amber Jones told her husband Matt that she was pregnant, he had a hard time containing his excitement. “He’s like telling the lady at the gas station in town immediately, you know,” she remembers. “[And] we haven’t told our parents yet.” Amber, who was 36 at the time, hadn’t been actively trying to have kids, although she and her husband hadn’t ruled out the possibility. If it happens, it happens, they thought.
In 2016, when it did happen, Amber was nervous, but that nervousness gave way to excitement as she made it through the first trimester. Once you get past that, everything’s fine, she’d been told. They began to prepare for their child-free days to come to a close. They’d have to stop taking in more dogs. No more manual labor helping her Dad on the family farm in Alabama, where Amber had been born and raised. A friend helped them remodel the bathroom, and Amber starting painting the baby’s room a soft, smoky blue-grey.
Amber couldn’t sleep before her 20-week prenatal appointment (it was actually closer to 21, since her doctor had been out of town), and was up doing the trim in the nursery that morning. At the appointment, the ultrasound technician was taking a long time, repeatedly leaving the room and coming back in. Something doesn’t look right, the doctor told them. The organs don’t look right. The heart doesn’t look right. Soon, they were sending Amber to a maternal fetal specialist.
About a week and a few tests later, they got the diagnosis: Trisomy 13, a rare genetic disorder involving multiple life-threatening abnormalities that is frequently described in medical literature as “incompatible with life.” Amber did her research. The prognosis was grim.
Medical research from the Wolfson Institute of Preventive Medicine, a leader in research and screening for fetal anomalies, estimates that by 12 weeks gestation, around half of all pregnancies diagnosed with Trisomy 13 end in miscarriage. For those that make it through delivery, the median life expectancy is about a week, and only 10 percent survive beyond their first year, according to the National Center on Birth Defects and Developmental Disabilities.
“It was just call after call after call explaining the situation over and over again, and just hitting a wall each time.”
Devastated by the diagnosis but decisive, Amber, at around 23 weeks into her pregnancy, started looking for places she could get an abortion. Similar to the other 43 states with gestational cutoffs for abortion, Alabama bans the procedure after 22 weeks. Their legal options looked slim. “It was just call after call after call explaining the situation over and over again, and just hitting a wall each time.”
Finally, Amber found a clinic in Florida, where the gestational limit is 24 weeks, a little later than most states in the region, which said it might be able to help. Rapidly approaching an invisible line that they had just learned existed, Amber and Matt were told they’d have to drive through the night if they wanted to make it to the clinic before the 24 week cutoff. It was a Thursday, and clinic workers pledged to stay open through the weekend for what would be a three-day procedure.
“So we’re like, holy shit. Ok. Let’s find somebody to come stay with the dogs, tell our parents what’s happening… we haven’t even told our parents,” she recalls. After driving through the night, “trying to hold it together,” she said, they finally reached the clinic.
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